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Monday 15 June 2009

Associations

There have been a few studies published of late concerning what other conditions endometriosis is associated with.

First up is a study from Brazil which looked at the frequency of celiac disease in women with and without endometriosis. Just to give you a brief overview, celiac disease is a digestive disorder that leads to poor absorption of nutrients through the gut due to damage of the small intestine. Celiac disease can result in people not being able to tolerate things like gluten and presents with a variety of symptoms (For more information on celiac disease follow this link). The study found that 0.66% of women without endometriosis had celiac disease, whereas 2.5% of women with endometriosis had celiac disease. So although the numbers were relatively small women with endometriosis were more likely to have celiac disease. This is interesting because, from my experience, a lot of women with endometriosis also have food allergies or intolerances.

Next is a study from Australia that looked at the frequency of pre-eclampsia in women with endometriosis. Pre-eclampsia is a condition whereby during pregnancy a woman suffers from hypertension. This can be a very serious problem if left untreated for both the mother and child. However, the overall result of this study was that there is no increased chance of suffering from pre-eclampsia if you have endometriosis. In fact there is some evidence to suggest that if you have endometriosis you are less likely to suffer from pre-eclampsia, which is good news, for a change.

Thursday 4 June 2009

Juneau Biosciences are looking for Women with Endo

If you have diagnostically confirmed endometriosis then there is a study being conducted by Juneau Biosciences that you may be interested in. The main aim of their research is to look for genetic similarities between women with endometriosis to try and find out which women are more likely to develop endometriosis and why. This could, in turn, lead to better diagnostic and therapeutic strategies.
If you think you’d like to participate in this study get onto the website www.endtoendo.com and have a look at the study details. If you do qualify you can expect the following:

You will be contacted by a study coordinator and introduced to the organization conducting this research

They will send you a packet with a questionnaire, medical record release, and saliva sample kit

After completion, you will send these items back to their facilities in the postage-paid envelope provided

If you are interested, they will send you occasional information regarding the progress of their research

Now, they do require access to your medical records and personal information which I know may put a few people off. Therefore, I have personally been in touch with the company and screened them to make sure they’re genuine, however if you have any queries then don’t be afraid to contact them via the contact details on their website, they are very amicable.