Living with endometriosis generally isn’t much fun, there’s an understatement. The disease puts so many extra strains on your life and relationships, yet it’s this personal aspect of the disease that often goes under recognised in the research. So wouldn’t it be nice if someone tackled this issue to help raise awareness about how difficult it is to live with endo and at the end of it, maybe find a way to help people be more understanding? Well, are you someone currently in a relationship living with endometriosis that resides in the United Kingdom? Then you may be eligible to take part in some research aimed at getting a better understanding on how endometriosis impacts relationships.
Here is an outline from the research team of the work being carried out
Endopart - Endometriosis: Improving the well-being of couples
Would you and your partner consider taking part in research about your experience of living with endometriosis?
Researchers at De Montfort University, Birmingham City University and the University of Nottingham are carrying out research into the impact of endometriosis on couples in the UK. The team will use the findings to make recommendations about how women with endometriosis and their partners can best be supported and how care can be improved. The research, led by Prof Lorraine Culley, has been funded by the UK Economic and Social Research Council and has received ethical approval.
The team would like to interview heterosexual couples living in the UK:
. who have been living together for at least one year,
. where the woman has experienced endometriosis-related symptoms for at least one year and
. where the woman has a diagnosis of endometriosis following laparoscopy.
Each partner will be interviewed separately. Findings from the study will be anonymous. If English is not your first language the team can arrange for an interpreter to be present.
If you and your partner would be interested in taking part:
. Visit www.endopart.co.uk to find out more and register your interest online or
. Contact Caroline Law, Research Assistant, at firstname.lastname@example.org or on 0116 2506124.
If that sounds like something you’d be interested in I heartily encourage you to check out the website and get in touch. I can recommend it especially as my wife and I have already taken part and I’m also an advisor to the research group, so it comes with my own personal seal of approval (if I had one).
From my own personal experience I can say the interviews are informal and relaxed, the people who do the research are lovely and you also get a £20 shopping voucher for taking part!